Huge Fan of Not dying
Whatever it is, the way you tell your story online can make all the difference.
Running up that hill: Talking cancer with ani haykuni
Whatever it is, the way you tell your story online can make all the difference.
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In support of Edward Lamb, running the Cambridge Half for MacMillan Cancer Support
This episode of ‘What’s Wrong with You?’ is proud to support a close friend of the show, Ed Lamb, as he runs the Cambridge Half Marathon to raise money for Macmillan Cancer Support to honor family members affected by cancer. Please consider a small donation here at Ed’s fundraising page: https://www.justgiving.com/fundraising/edrlamb.
Resources
Vann: https://www.thevann.com/
Ani Haykuni: https://anihaykuni.com/
Macmillan cancer support: https://www.macmillan.org.uk/
Mothers of Job: parents, authority, and medical advocacy
Whatever it is, the way you tell your story online can make all the difference.
In Support of Helen and Douglas House, the world’s first children’s hospice
This special episode of ‘What’s Wrong with You?’ is in support of Helen and Douglas House, the world’s first children’s hospice. The hospice cares for terminally ill babies and children who will die prematurely. Please visit here to learn more about how you support their work through donating, fundraising, volunteering, and charity shopping.
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Professor robert douglas-fairhurst
Whatever it is, the way you tell your story online can make all the difference.
Professor Robert Douglas-Fairhurst is Professor of English in the Faculty of English and Fellow of Magdalen College, Oxford. In addition to his award-winning work on Charles Dickens and Lewis Carroll, Professor Douglas-Fairhurst has written about his experience with multiple sclerosis. Metamorphosis (2023, Penguin Books) has been described as ‘a book that will stay with you for life’. In this wide-ranging interview we discuss MS, relationships, writing on illness, and ‘managing’. Thank you to Robert for your time and story!
Read more about multiple sclerosis here.
Check out some of Professor Douglas-Fairhurst’s work here:
Metamorphosis: A Life in Pieces (2023)
The Story of Alice: Lewis Carroll and the Secret History of Wonderland (2015)
The Turning Point: A Year that Changed Dickens and the World (2022)
Laura
Whatever it is, the way you tell your story online can make all the difference.
Thank you to our inaugural guest, Laura, for sharing her story and taking us through some of the fundamental questions of disability and health. In this episode we touch on a number of medical terminology. Here is a list to help you learn and use in discussions about healthcare, and hopefully with friends or loved ones who may be undergoing illness. We have also included a list of resources below for students at the University of Oxford seeking disability support.
Fibromyalgia: 'Fibromyalgia is a disorder characterized by widespread musculoskeletal pain accompanied by fatigue, sleep, memory and mood issues. Researchers believe that fibromyalgia amplifies painful sensations by affecting the way your brain and spinal cord process painful and nonpainful signals.' (Mayo Clinic)
Type 1 Diabetes: 'There are two main types of diabetes: type 1 and type 2. When you’ve got type 1 diabetes, you can’t make any insulin at all. If you’ve got type 2 diabetes, which is the most common, it’s a bit different. The insulin you make either can’t work effectively, or you can’t produce enough of it. They’re different conditions, but they’re both serious.' (Diabetes UK)
Insulin pump: 'An insulin pump is a small electronic device that releases the regular insulin your body needs through the day and night — so you don’t need to do insulin injections.' (Diabetes UK)
Omnipod: Omnipod is a tubeless insulin delivery system designed for people with type 1 diabetes. (Omnipod)
Continuous Glucose Monitor: 'Flash glucose monitors and continuous glucose monitors let you check your sugar levels without you having to prick your fingers. You wear a small sensor on your body day and night that reads your sugar levels so you can see the information on your mobile, or other device.' (Diabetes UK)
EpiPen: '0.15 mg Auto-Injectors are for people who are at risk for or have a history of serious allergic emergencies (anaphylaxis) to things like stinging and biting insects, allergy shots, foods, medicines, exercise, or unknown causes. Self-injectable devices (auto-injectors) that contain epinephrine. According to National Food Allergy Guidelines, epinephrine is the first-line treatment for life-threatening allergic reactions.' (EpiPen)
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